One thing people may not know about me is that I have disabilities. I am on the spectrum and epilepsy. Between the two, I struggle the most with epilepsy. Epilepsy is not something good to have. Lots of struggles come out of it. I decided to talk about those struggles today, which are similar to people dealing with neurological and mental disorder.
The first is when you actually have a seizure.. Those are not fun- you usually are never aware. After one, you tend to be sleepy and might say things that are just weird.
Another struggle belongs to getting EEG’s. I am kinda of tired of those. I really don’t like them, and some of being in a video EEG- that would staying in a hospital for about a week You might have other tests to take- ones’ that are not an EEG.
Well, one of the biggest battles is the meds- as in not working. I am dealing with that now. Results have been stumbling, wobbling, and tiredness. In my case, it is even worse- yes, I have the three I just just, but my legs are hurting and my feet don’t want to move. The wobbliness came to a point where I can barely keep my balance. I actually left my neurologist puzzled- at a lot (from the source and the meds).. My seizures appear to be deep in the brain: reasons why an EEG can’t pick up on it.
Lots of emotions come with this. Anger, fear, stress, and uncertainty are just some of them- some of the same ones are similar to those with mental illness. I actually relate to the characters in Rent due to my epilepsy- some of the emotions are the same. Yes, it is a different illness, but the emotions are very much the same.
Having epilepsy makes it hard finding a job or living on your own. That is part of why I am still living with my family. I do have a job coach, but having to slow down a bit. My blog helps a lot- it is an outlook for me.
I do have some escapes from it—–they mostly belong volunteering and going to musical theatre. As a matter fact, going to musicals is is the biggest escape I have. I really can understand what it is going on- learned that from several years of going and taking theater classes at university-I am a theater minor after all. Despite musical theatre being my biggest escape, it is not where my calling is. I actually strongly believe it is helping those living in poverty.